Patient Experience Data
PED Hub
Patient Experience Data (PED)
"Patient Experience Data" is data that describes patients' experiences, beliefs, needs and preferences relating to:
<Definition by the US Food and Drug Administration (US FDA)>
All symptoms of the patient's illness and its natural history
The impact of the disease on the patient's physical functioning and quality of life
Patient Treatment Experience
Input about which outcomes are important to patients
Patient outcomes and treatment preferences
The relative importance of the problem as defined by the patient
The PED contains the following data:
Describes individual experiences as well as group characteristics
Not only numerical values, but also letters and words
Not only in the examination room, but also in everyday life
Not only clinical trials, but also questionnaires, interviews,
Also obtained from social listening etc.It can be collected and used not only by medical professionals, researchers, and companies, but also by patients, their families, and supporters.
PED refers to a broader range of data types, including Patient Reported Outcomes (PROs).
PED creates value from a new perspective in treatment and care
Patient engagement (PE) is essential for utilizing PEDs
Patient Experience Data Training Materials Search Tool
Coming soon
*This tool was developed by the Global Patient Engagement division of Boehringer Ingelheim in Germany and will be provided to YORIAILab free of charge so that it can be widely used by a wide range of people. The original tool is provided in English. The Japanese translation is being finalized by YORIAILab.
*Currently, most training materials are available in English.
Please use this together with the Japanese version of the Global PED Navigator Tool provided by PFMD.
