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川辺の紅葉

1st YORIAU Symposium  
YORIAILab 1st Anniversary Seminar

Co-creation with patient communities in the digital age

- Values, challenges, and future vision of online communities for people with disabilities -

Purpose of the symposium

In today's rapidly advancing, highly digitalized society, the nature of patient communities is also changing significantly. In addition to traditional analogue health communication, virtual health communication has become widespread, and digital tools have become more widely accepted by patients and citizens as a more active medium. In the field of drug development, discussions on patient participation have developed rapidly, and various examples of practice have begun to accumulate. Activities to collect patient experiences more systematically and link them to the development of drugs that meet patient needs are deepening. In order to treat so-called patient experience data as evidence and utilize it for decision-making at various stages of healthcare, it is necessary to gradually and continuously build data through co-creation with patients.

In light of this situation, we believe that the time has come to provide a forum for thorough discussion of the usefulness, challenges, and future of "online communities for those affected," which have been developing in recent years as a health communication tool, and have therefore decided to hold the first "More Together Symposium."

Date and time: April 25, 2025 (Friday) 15:00🕒~19:30🕢

Venue: AP Tokyo Yaesu, 10th floor, Conference Room W
& Online (Zoom Webinar)

This event ended with many participants.

thank you

All registered attendees can watch the video here.

program

15:10~ Keynote speech by Kento Asano

Osaka University Hospital Department of Future Medical Development

This presentation will focus on the evolution of clinical trials in the digital age and the role of patient communities. Patient communities are no longer just a place for information exchange; they have evolved into communities of practice where patients learn from each other and influence the healthcare system. The spread of digital tools has expanded their functions, and while online information sharing and empowerment have progressed, issues such as representativeness and quality of information remain. In particular, international examples such as "PatientsLikeMe" provide significant insights into the realization of patient-centered healthcare. In addition, the use of "Patient Experience Data (PED)," which digitizes patients' subjective experiences, and the introduction of DCT (Decentralized Clinical Trials), which reduces the burden of patient visits, have expanded the possibility of patients' voices improving the quality of clinical research. In the future, we will need an era in which all stakeholders, including patients, can solve problems through co-creation and build better healthcare together.

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16:00~ Panel discussion            

Five community organizers will exchange opinions on the role of patient communities in a digital society, the value of their evolution, and the potential for co-creating data with patients by utilizing the "patient voices" that can be obtained from them.

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17:00~ YORIAILab Establishment Seminar

Staff leading various activities, including the "Clinical Trial Ambassador Project," will introduce YORIAILab's history and activities to date, as well as its aspirations for the future.

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18:00~ World Cafe Networking Event Venue: 12th floor Conference Rooms F+G          

This is a time for people from various backgrounds to casually interact with each other, with the platform being introduced by online community service operators and others. 🌟 Drinks and snacks will be provided.

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🌏Companies and organizations exhibiting at World Cafe

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This symposium has been sponsored and supported by the following companies and organizations:
(Listed in alphabetical order)

Sponsorship

3H Medi Solutions Co., Ltd.

Buzzreach Inc.

Miraic

Peer Harmony Co., Ltd.

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PPEC General Incorporated Association

Jin Lab

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Beta Trip Inc.
Encourage

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Sponsored by

INSPIRE JAPAN WPD Psoriasis Awareness Promotion Association (General Incorporated Association) CMIC Co., Ltd.
CMIC Healthcare Institute Co., Ltd. Nippon Medical School Department of Medical Management
Japan Agency for Medical Research and Development (AMED) Nippon Boehringer Ingelheim Co., Ltd.
Parexel International Co., Ltd. General Incorporated Association PPI Japan UCB Japan Co., Ltd.

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