Materials related to patient and citizen
Patient and Public Involvement - Resources

📑YORIAILab+ Published Literature

Yagi, Nobutaka. What is "meaningful" engagement? Clinical Evaluation. 2025;53(2):244.

Yagi, Nobutaka; Matsuyama, Kotone; Nozaki, Norimasa; Hoshiyama, Masumi; Omomo, Keiko; Inoue, Takahiro. Clinical trial ambassadors (efforts to support appropriate understanding of clinical trials and patients' decision-making regarding clinical trial participation) . Abstracts of the Japanese Society of Clinical Pharmacology and Clinical Oncology Annual Meeting. 2023;44:Session ID 44_3-CP-D3 of the 44th Japanese Society of Clinical Pharmacology and Clinical Oncology Annual Meeting.

https://doi.org/10.50993/jsptsuppl.44.0_3-CP-D3

Kasai, Y; Nozaki, N; Yagi, N; Omuro, S; Omomo, K; Matsuyama, K. Patient training initiative for drug development, the “Clinical Trial Ambassador Project” and future challenges: Developing a social infrastructure for drug development that utilizes patient feedback . Clinical Pharmacology. 2023;54(4):173-180.
https://doi.org/10.3999/jscpt.54.4_173

Kotone Matsuyama. Patient Public Involvement in Clinical Trials and Its Future Prospects . Abstracts of the 43rd Annual Meeting of the Japanese Society of Clinical Pharmacology and Therapeutics. 2022;43:Session ID 43_3-C-EL09-2 of the 43rd Annual Meeting of the Japanese Society of Clinical Pharmacology and Therapeutics.
https://doi.org/10.50993/jsptsuppl.43.0_3-C-EL09-1

Nobutaka Yagi. Why are clinical trial ambassadors necessary? Background and expectations for their role . Abstracts of the Japanese Society of Clinical Pharmacology and Clinical Oncology Annual Meeting. 2022;43: Session ID 43_3-C-EL09-2 of the 43rd Japanese Society of Clinical Pharmacology and Clinical Oncology Annual Meeting.
https://doi.org/10.50993/jsptsuppl.43.0_3-C-EL09-2

Kasai Yuta, Matsuyama Kotone, Yagi Nobutaka. Patient Public Involvement in Clinical Trials: Clinical Trial Ambassadors' Efforts as Co-Creation of Drug Development with Patient Groups . Abstracts of the 43rd Annual Meeting of the Japanese Society of Clinical Pharmacology and Medicine. 2022;43:Session ID 43_3-C-EL09-3 of the 43rd Annual Meeting of the Japanese Society of Clinical Pharmacology and Medicine.
https://doi.org/10.50993/jsptsuppl.43.0_3-C-EL09-3

Presentations

Pharma IT 2025 Seminar. Patient experience data and the potential of utilizing online patient communities. How to utilize patient experience data in drug development and medical settings . April 10, 2025.

The 16th General Meeting of the Japan Society of Clinical Trials and Clinical Trials. Symposium 22. New communication design using VR and MR to ensure diversity in clinical trials . Utilizing the metaverse as a new touchpoint with patients - Towards building sequential and sustainable patient experience data . March 1, 2025.

The 16th General Meeting of the Japanese Society of Clinical Trials and Clinical Trials. Lunch Seminar 6. Borderless: Beyond the boundaries of medical institutions. Clinical Trial Ambassador Project initiatives realized through a patient-centered approach . February 28, 2025.

Osaka Intractable Disease Consultation and Support Center Project Prefectural Citizens' Gathering Symposium What we can do to ensure that medicines arrive quickly ~ Eliminate the misunderstandings of different knowledge positions. Lecture 2. Learn about clinical trials ~ Clinical trial ambassador activities ~ Turning knowledge into power ~ What can be done in various positions . February 22, 2025.

Osaka University Hospital, FY2024 Clinical Trial and Ethics Committee Member Training. Lecture 3. Patient Support Group Activities . February 22, 2025.

The 45th Annual Meeting of the Japanese Society of Clinical Pharmacology. Symposium 20. Patient and Public Involvement (PPI) in Clinical Research. The value of Patient Experience Data and open innovation starting from patient and public involvement . December 13, 2024.

The 65th Annual Meeting of the Japan Lung Cancer Society. Patient Advocate Program Lecture 6. Understanding Clinical Trials: Activities of Clinical Trial Ambassadors . November 1, 2024.

21st DIA Japan Annual Meeting 2024. Short Course 1: Patient Experience Data (PED) – Value and Utilization in Drug Development . October 28, 2024.

21st DIA Japan Annual Meeting 2024. Session 21: Plain Language Summary (PLS) for promoting mutual understanding. The state of Plain Language Summary (PLS) for social co-creation: the current situation in Japan and globally, and its ethical perspective . October 28, 2024.

40th Research Conference of the National Rare Disease Center Research Group. Panel 5. Initiatives to Realize Patient and Citizen Participation Linked to Social Co-creation: From Clinical Trial Ambassadors to YORIAILab . September 28, 2024.

ARO Council 11th Academic Conference. Oral Presentation 1. Current status and examples of initiatives to realize patient-citizen engagement that stimulates social co-creation . September 20, 2024.

1st Behavioral Science and Survivorship Seminar, 2024. PPI (Patient and Public Involvement) - Let's think about the value we can create together . June 26, 2024.

15th Annual General Meeting of the Japan Society for Clinical Trials and Clinical Trials. Luncheon Seminar 1: Considering the clinical trial environment from the perspective of patient and citizen participation - To build healthcare evidence from a wider range of perspectives. "Learning together" about clinical trials: What the Clinical Trial Ambassador Project creates for society . March 8, 2024.

The 44th Annual Meeting of the Japanese Society of Clinical Pharmacology. Poster Presentation. Clinical Trial Ambassador (Initiatives to support proper understanding of clinical trials and patients' decision-making regarding clinical trial participation) . December 14-16, 2023.

The 39th Research Conference of the National Rare Disease Center Research Group. Panel 2. Patient and Public Involvement (PPI) in Drug Development and the Initiatives of Clinical Trial Ambassadors: Social Co-Creation to Properly Understand Clinical Trials and Lead to Patient Decision-Making . December 7, 2023.

The 23rd Conference on CRC and Clinical Trials 2023. Co-hosted seminar 5 Clinical Trial Ambassadors (efforts to support proper understanding of clinical trials and patients' decision-making to participate in clinical trials). Why are clinical trial ambassadors necessary? . September 16, 2023.

The 23rd Conference on CRC and Clinical Trials 2023. Co-hosted Seminar 5 Clinical trial ambassadors (efforts to support proper understanding of clinical trials and patients' decision-making to participate in clinical trials). What clinical trial ambassadors expect from CRCs, and their impact on clinical trials and consent acquisition . September 16, 2023.

Juntendo University Immunotherapy Research Center Public Lecture. Session: A message to patients and citizens participating in medical research and clinical trials - To deliver research results to patients and their families - A new initiative between patients and pharmaceutical companies: Clinical Trial Ambassador Project . March 19, 2023.

43rd Annual Meeting of the Japanese Society of Clinical Pharmacology. Educational Lecture 9 : Patient Public Involvement in Clinical Trials - Clinical Trial Ambassadors' Efforts as Co-Creation of Drug Development with Patient Groups . Why are clinical trial ambassadors needed? The background and expectations for their role . December 2, 2022.

43rd Annual Meeting of the Japanese Society of Clinical Pharmacology. Educational Lecture 9 : Patient Public Involvement in Clinical Trials - Clinical Trial Ambassadors' Efforts as Co-Creation of Drug Development with Patient Groups . Patient Training Package for Raising Awareness of Clinical Trials and Issues in Their Operation . December 2, 2022.

43rd Annual Meeting of the Japanese Society of Clinical Pharmacology. Educational Lecture 9 : Patient Public Involvement in Clinical Trials - Clinical Trial Ambassadors' Efforts as Co-Creation of Drug Development with Patient Groups. Patient Public Involvement in Clinical Trials and Its Future Outlook . December 2, 2022.