1st
Co-creation with patient communities in the digital age
~The value, challenges, and future vision of online communities for those directly involved~
Date and time: Friday, April 25, 2025, 15:00-19:30
Location: AP Tokyo Yaesu, 10th Floor Conference Room W & Online (Zoom Webinar)
15:00~
opening
The staff who lead various activities, including the "Clinical Trial Ambassador Project," will introduce YORIAILab's journey so far, its activities, and its aspirations for the future.
15:10~ Keynote speech by Kento Asano
Osaka University Hospital, Department of Future Medical Development
This presentation will focus on the evolution of clinical trials in the digital age and the role of patient communities. Patient communities are no longer simply a forum for information exchange; they have evolved into communities of practice, where patients learn from each other and influence the healthcare system. While the widespread use of digital tools has expanded their functionality, promoting online information sharing and empowerment, challenges remain, such as representativeness and information quality. International examples such as "PatientsLikeMe" offer significant insights into the realization of patient-centered healthcare. Furthermore, the use of "Patient Experience Data (PED)," which digitizes patients' subjective experiences, and the introduction of decentralized clinical trials (DCT), which reduces the burden of patient visits, offer greater potential for patient voices to improve the quality of clinical research. Going forward, we need an era in which all stakeholders, including patients, can co-create solutions to problems and work together to build better healthcare.
15:10~ Keynote speech by Kento Asano
Osaka University Hospital, Department of Future Medical Development
This presentation will focus on the evolution of clinical trials in the digital age and the role of patient communities. Patient communities are no longer simply a forum for information exchange; they have evolved into communities of practice, where patients learn from each other and influence the healthcare system. While the widespread use of digital tools has expanded their functionality, promoting online information sharing and empowerment, challenges remain, such as representativeness and information quality. International examples such as "PatientsLikeMe" offer significant insights into the realization of patient-centered healthcare. Furthermore, the use of "Patient Experience Data (PED)," which digitizes patients' subjective experiences, and the introduction of decentralized clinical trials (DCT), which reduces the burden of patient visits, offer greater potential for patient voices to improve the quality of clinical research. Going forward, we need an era in which all stakeholders, including patients, can co-create solutions to problems and work together to build better healthcare.
15:10~ Keynote speech by Kento Asano
Osaka University Hospital, Department of Future Medical Development
This presentation will focus on the evolution of clinical trials in the digital age and the role of patient communities. Patient communities are no longer simply a forum for information exchange; they have evolved into communities of practice, where patients learn from each other and influence the healthcare system. While the widespread use of digital tools has expanded their functionality, promoting online information sharing and empowerment, challenges remain, such as representativeness and information quality. International examples such as "PatientsLikeMe" offer significant insights into the realization of patient-centered healthcare. Furthermore, the use of "Patient Experience Data (PED)," which digitizes patients' subjective experiences, and the introduction of decentralized clinical trials (DCT), which reduces the burden of patient visits, offer greater potential for patient voices to improve the quality of clinical research. Going forward, we need an era in which all stakeholders, including patients, can co-create solutions to problems and work together to build better healthcare.
18:00~ World Cafe Networking Event Venue: 12th floor Conference Rooms F+G
This is a time for people from various backgrounds to casually interact with each other, with the platform being introduced by online community service operators and others. 🌟 Drinks and snacks will be provided.
🌏Companies and organizations exhibiting at World Cafe





